A Q&A about autism with Steve Silberman, author of NeuroTribes

As a society, the history of autism makes clear that the notion that there is one best way to learn, one best way to experience the world, and one best way to be human, is bunk. That belief prevailed through most of the 20th Century, when psychiatrists elevated themselves into a position akin to secular priests. But it’s based on a false model of how human brains work, and it ends up stigmatizing and marginalizing people who have tremendous gifts to offer society. 

Think about it: why would the community of human minds be less diverse than, say, a rainforest? But it isn’t. We’re part of the natural world, and nature thrives by experimenting, by fostering the development of many different types of individuals. In a rainforest, this wild riot of variety and difference makes communities of plants and animals more resilient in the face of changing conditions. As we face the challenges of the 21st Century — which include a rapidly changing global climate! — we will need many different types of minds working together. As a teacher, you’re helping to build the foundation on which the fate of humanity may depend.

A Q&A about autism with Steve Silberman, author of NeuroTribes

New Research Suggests Social Issues are Down to Neurotypicals more than Autistics | Intersectional Neurodiversity

jenroses:

geekysciencemom:

“In other words, they found that an important contributor to social and communication problems stemmed not from the autistic individuals, but rather from the neurotypical reactions, based on (by definition) exclusionary social attitudes and first impressions, which led to a decreased drive to interact with autistic individuals. That is to say, neurotypicals tend to decide, within moments of meeting autistic people, that autistic people are less worth socialising with than neurotypicals.”

aka: why it is more important to train nt people to cope with a diversity of ways of thinking than it is to force neurodivergent people to conform. 

New Research Suggests Social Issues are Down to Neurotypicals more than Autistics | Intersectional Neurodiversity

wetwareproblem:

thereschocolateonmykeyboard:

wetwareproblem:

I am livid.

Apparently it’s just an accepted thing in modern medicine that auties have no theory of mind – not that we’re bad at it, but that we are incapable of attributing beliefs, emotions, or mental states to another person. And this has been a thing for thirty years now. Nearly my entire life.

The “evidence” for this:

  • Social difficulties are one of the key hallmarks of autism.
  • A study using new methodology, a low-res scanning method, and a sample size of six fucking people.
  • Another study, using fMRIs, which showed no social response when looking at a series of moving geometric shapes that NTs apparently assign social interactions to.
  • A third study, back to shitty PET imaging, where we had to guess emotional states based on pictures of eyes and nothing else.
  • A fourth one where we were expected to respond differently based on where a person we watched was looking.
  • And finally, one that showed less activity in a region of the brain that apparently involves social function.

Apparently not sought in any of this:

  • An autistic person’s explanation of how we think about other people.

Gee, why would people with social difficulties for whom eye contact is actually painful have trouble ascribing motive to inanimate objects, or reading intent and emotion from eyes? Must be ‘cause they literally don’t have any ideas whatsoever about how anyone else’s mind works! No, no, why would we ask them how their minds work? That’s just nonsense.

And this has been Accepted Fact for basically all my life. Un-fucking-believable. The sheer lack of self-awareness in professional scholars of the human mind is breathtaking.

(Hey, anti-self-dxers! You know how you’re always saying “psychologists have more knowledge about these issues than you can?” This right here is why we’re laughing at you. This is the sort of thing we’ve come to expect from the establishment.)

Okay, let me clarify: I am autistic. Not only do I have a theory of mind, I use it way more actively than basically any neurotypical I’ve spoken to. I am literally always the one pointing out how people are sure they have reasons for doing what they do, but everyone else is just being a dick. This comes from the fact that I need it to survive on a daily basis. Because I have trouble reading nonverbal social cues, and because people tend to exploit or use disabled people at a breathtaking rate.

 I can’t just glance at someone and size them up; I am constantly, actively thinking about the motives and goals behind literally every social interaction from everybody. Because I’ve had to spend so much time and energy on figuring out how my head works, and how to manage that, which involves learning how I’m different, ie, how normal brains work. I would be unable to interact with people if I weren’t capable of constantly developing theories about their motives, intentions, and emotions. I’m nowhere near perfect at it – my hit rate will be lower than a NT’s in face-to-face communications, but that’s because you have extra data I am lacking. Given the same data set to work from, I’m willing to bet my hit rate would be higher, because I’ve had to actively develop and constantly use this tool.

NTs out of psychology 2kforever.

Okay, can I just say something (if you already know this, feel free to ignore me): If you ever have to argue about this with a neurotypical be sure to point out that this so called evidence is not based on valid research. Validity is one of the basics for scientific studies and none of these experiments are valid. Validity means that you actually measure what you are claiming to measure. Meaning that if you want to find out if autistic people have a theory of mind, you have to test that exact thing. The only way to do that, really, is to ask autistic people about how they understand/interpret other peoples social expressions. Personally, I’d think the best way to do that would be to show video footage of a social expression and ask the person about it. Like, video of the full body. Also, such small sample sizes make it very hard to get significant results. Research that doesn’t fulfill basic criteria (validity, reliability and objectivity) has literally no meaning at all. (Seriously, these examples mentioned above are very debatable in terms of operationalization for any group, not just for autistic people.) So if you ever have to argue about this, be sure to point out the many ways in which this research does not meet the most basic criteria for quality.

Yes, that’s exactly the part that brings me from “What the fuck” to “spitting with the white hot fires of a thousand angry suns”: How the hell did this become an accepted and normalized idea, if this is the support it stands on?

Oh, right, because it confirms biases.

There is so much bad science around autism – and so little of it challenged – except by autistics who are rarely listened to (thanks to organisations like A$).  

alder-knight:

cosetties:

i really like the advice “write marginalized characters but don’t write about marginalization unless you experience it” 

absolutely i think cis people should expand their horizons and write trans characters, but they shouldn’t write stories about being trans. likewise i think allistic / NT authors should write about autistic characters! but not stories about being autistic. 

represent us. absolutely. but don’t tell our stories. let us do that.

YOOOOOOO. This is an excellent distinction!

Excellent.

you know what fucks me up a little?

iamthestrangerinmoscow:

breaks-out-the-high-g-note:

Doctor who was one of my biggest special interests right, still is, but I stopped. I don’t remember all the stuff I knew about doctor who before. Like yeah I can recite the doctors in ascending order and if you describe an episode to me I will probably be able to tell you the name of it, but a lot of stuff is gone, and it doesn’t feel the same. And that’s because I talked too much about it and had to be punished. Doctor who makes me really fucking happy and I wanted to share it with my parents because I love them, and they would get angry with me for knowing too much about it. They said it was an “unhealthy obsession” and they took my cards away, all my monster invasion and alien files cards, and my sonic screwdrivers and my tardis (which I bought with my own money). They would use them against me, for leverage. These things were like my sense of self and they were being used as a bargaining chip. They weeded out my special interests based on what was more productive; Nature could stay. But this one was just too much of an inconvenience.

Now I’m older and I know I shouldn’t talk about the things I love too much with my parents. They’ll get angry. And now I’m allowed all my stuff back, since I’m not annoying them about it anymore. I have my sonic screwdrivers, tardis, annuals, everything. But it doesn’t really feel the same… And it’s fucking shit.

That’s so fucked up I’m so sorry about it 😦 I feel this on a personal level because Doctor Who is my special interest and I can’t imagine how awful that must feel. My parents were never very happy with me being obsessed with it, but they never did anything as nasty as that.

And I also have an amazing grandmother who always supported me and because she knows DW makes me very happy she encouraged it since day one, like she always does with my special interests. She bought me so many DW books and other merch and she always defended me. And she watches every single episode so that we can discuss it together and every time we talk she asks “anything new in the Doctor Who world?” and I love that so much.

There are many stories out there of special interests being “beaten” out of autistic people, metaphorically or literally. I really hope you will recover from that and find something that will make you happy again.

There are many stories out there of special interests being “beaten” out of autistic people, metaphorically or literally. 

This just sings to me in so many ways.  It’s hard not to feel awful when you read about another generation dealing with this kind of treatment.  You wonder how things haven’t changed. 

In the 80s, my parents treated me much the same over my ‘specialised interests’ like Doctor Who. They made fun of me for it (and they watched when they were younger!). The damage this kind of mockery (by parents, by other authority figures) is so disfiguring. Most of them don’t care, either. They’ll never apologise. 

I’m grateful for finding community online over the years, hope others can find/have found the same.